How to care for a child with autism 1. use your child's name so they know you're speaking to them sounds for shizzle | sizzle on top | but below | body | full of body | a pile-up this match day crowd | that Philharmonic tuning | this day in the life | ending chord clanging | they all go to eleven a club full of clubbing | playing every single song | all at once | on repeat | but every vinyl lyric crackles | down with the beat I hear lips | smacking | squawking | flapping | gushing | flushing | then oo-ing | ahh-ing | plosives plushing | fricatives fretting | an eyeful of fresh flob | firing off | “feeding” | or is it “finish” | or maybe “Philip” feels like sounds circle my ear | then get trapped here | or get had there | all sounds circle in | circle here | and it's difficult to hear | when what I hear | is all too clear | and too near | and far | too much | to sound like you are.
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2. use visual cues paint in corkscrews in a pot,ㅤㅤㅤmixing, merging ㅤㅤㅤㅤ- rainbows over rainbows behind my eyes,ㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤbright then dark spots blur a line tracedㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤthrough the air dayglo, fluo-pinkㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤknife-edge visions crash-landed branchesㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤbusting chops on the forest floor by the wind that figured I wouldn’t notice,ㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤbut I couldn’t ignore coz they poked me in the eye,ㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤmade me try to comply, then they multiplyㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤevery scribbled line in the sky with clouds that blingㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤand walls that zing the tiny ant that can’t helpㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤbut sizzle out loud even that door coruscates,ㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤand those windows in speeches, speak right through meㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤwith a voice that screeches its fingers downㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤthe blackboard of my mind yet even light circles my eyeㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤlike night, like the sight of rainbows over rainbows -ㅤㅤㅤㅤmerging, mixingㅤㅤㅤㅤin a pot, corkscrews in paint.
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3. If they have a meltdown give your child space and don’t touch them heckles hacklesㅤspeckles shacklesㅤtied down tied upㅤlying down standing up stroked by fireㅤcaressed by nailsㅤchucked under the chin by chains a belly rubㅤa sandpaper scrubㅤa brush with brick and mortarㅤa kiss by lips of murder a pat by punches in kidneys or liver or heart or soul as fingers circle my spineㅤlike tortureㅤlike a departureㅤto standing out loud in painㅤㅤin painㅤㅤin pain.
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4. Help them by supporting routines and transitions into tomorrow ㅤㅤI take today with stopwatch timings into the next hourㅤㅤI roll the minutes up into carpetsㅤㅤor carpet bags of diary entriesㅤㅤand alarm clocks ringingㅤㅤat exactly 14 minutes past the hourㅤㅤat 17 minutes past I have to wash and wash and wash and then dryㅤdryㅤdryㅤㅤmy eyesㅤㅤface NO NO face then eyesㅤㅤㅤnot eyes then face then turn the handleㅤㅤㅤrinse and repeat turn the handleㅤㅤㅤand at exactly 21 minutes past the hour I can retreatㅤto tableㅤand seatㅤand breakfast of exactly 52 cornflakesㅤㅤand exactly 124mil of milk at room temperatureㅤㅤat 19degrees C and the clock hands circle my face and at exactly 29 minutes to the hourㅤㅤI can finally approach the door and nodㅤㅤand say no moreㅤㅤand ensure that I’m sureㅤㅤthat we’re all sureㅤㅤthat that door is the same doorㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤforever more.
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5. Encourage simple gestures, eye contact and pictures or symbols to support what they're saying I open upㅤㅤto open up but my Spirit Lake brainㅤㅤis logjammed again in the dark alive at nightㅤㅤas light spreads like thoughtㅤㅤlike the ideaㅤㅤㅤㅤborn but not deliveredㅤㅤnot dispensedㅤㅤnot vomitedㅤㅤor regurgitated to chew onㅤㅤto ruminateㅤㅤthat which could illuminate each word is barbed wireㅤㅤeach syllable a trap that caught that quickeningㅤㅤand cooked it for its tea in the ovenㅤㅤㅤㅤㅤㅤof my mind as each word circles my lips like a stickㅤㅤㅤlike a tongue like a lickㅤㅤㅤㅤlike the thick pith of power sprung up from the sourceㅤㅤthat capricious ram that’s nowㅤㅤㅤㅤㅤcornered mouthing tongue-tied orisonsㅤㅤfor its life while all I can do is rock ㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤrock ㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤrock ㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤrock ㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤㅤrock
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